Six adults in various poses around a man in a wheelchair.

Western Pennsylvania Patient Registry 

The Western Pennsylvania Patient Registry (WPPR) is a research registry that connects stroke survivors with research opportunities. 

About Us

Why Join the WPPR Community?

We work with both stroke survivors and researchers. Our goals are to increase what we know about strokes, help survivors of a stroke, and learn about how the brain works. We ask people who have survived a stroke to join our registry. If they choose to join, we may introduce opportunities to participate in research. If a stroke survivor is interested and qualifies for a research study, we put them in contact with research staff so they may hear more about the study. Big picture: we make connections between stroke survivors and researchers through WPPR.

For Stroke Survivors

Two people with hands touching during occupational therapy.

Stroke survivors that are interested in learning more about WPPR and joining the registry should click the link below for more information.

Stroke Survivor Information

 

For Researchers

Close up of multiple brain scans

Researchers that are interested in recruiting stroke survivors from WPPR should click the link below for more information.

Research and Recruitment Information

Overview of WPPR

  • What is the Western Pennsylvania Patient Registry (WPPR)?
    • WPPR is a research registry. A research registry contains information about people who have similar medical conditions and who are interested in participating in research studies on these medical conditions. For WPPR, we are interested in people who have survived a stroke.
  • Why should I consider joining WPPR?
    • Researchers use registries to find individuals who might be interested in participating in their research studies.
  • What happens to my information if I join WPPR?
    • Information placed in WPPR is de-identified. No one can tell who you are from the information available in WPPR except for the Registry Coordinator, Denise Balason.
  • What does the Registry Coordinator do with my information?
    • If you qualify for a study, Denise will contact you to tell you about it. If you are interested, she will put you in contact with the study researcher.
  • Does joining WPPR mean I have to join a study?
    • No! WPPR is a way to hear about studies that you are eligible for. The choice to participate in any research study is always yours.
A group of people in a park, three women and two men, all smiling and laughing.

Meet the WPPR Team 

The WPPR Coordinator is Denise Balason. Denise is the primary contact for both stroke survivors and researchers. 

The rest of our team is made up of scientists, doctors, and clinicians that are interested in helping stroke survivors and furthering stroke research. These include the Co-Directors, Drs. Julie Fiez and George Wittenberg, and Committee Members, Drs. Michael Dickey and Brad Mahon. 

Meet Our Team